AACR 2018- The Global ROS 1 Initiative: a patient-researcher partnership generating open source, oncogene-driven cancer models and data

Title

The Global ROS 1 Initiative: a patient-researcher partnership generating open source, oncogene-driven cancer models and data

Authors

Janet Freeman-Daily1, Lisa Goldman2, Tori Tomalia3, The ROS1ders4, Christine M. Lovly5, Manali I. Patel6, Alice T. Shaw7, Bonne J. Addario8, Guneet Walia8, Steven W. Young9, Robert C. Doebele10

1ROS1der patient/activist, Federal Way, WA; 2ROS1der patient/activist, CA; 3ROS1der patient/activist, MI; 4ROS1der patients/activists, CA; 5Vanderbilt-Ingram Cancer Center, Nashville, TN; 6Stanford University, Palo Alto, CA; 7Massachusetts General Hospital, Boston, MA; 8Bonnie J. Addario Lung Cancer Foundation, San Carlos, CA; 9Addario Lung Cancer Medical Institute, San Carlos, CA; 10University of Colorado Denver, Aurora, CO

Introduction

Motivated, Engaged, ROS1 + Online Community (Facebook group, Facebook page, ROS1cancer.com LungCancer Foundation.org/ROS1) to increase the available oncogene-driven patient data, specimens, and cancer models.